Progeria

Last night i watched a documentary on an ageing disease called Progeria. This was very traumatic for me because i felt very sorry for what i saw in the programme. I realise even more now how lucky i am for the life i have even if at times i feel a stroke of ‘bad luck’. There are so many diseases out there without a cure, main one being AIDs but because Progeria is so rare many of us do not know about it including myself till i saw the programme & ways to help support. Sometimes i feel helpless, i wish i could save the whole world but a lot is out of my reach or control, so i do help projects where i can assist. I believe it’s better to at least save one life than none at all.

Progeria (Hutchinson-Gilford Progeria Syndrome/HGPS) is a condition of accelerated ageing. It was first described by Jonathan Hutchinson in 1886 & independently by Hastings Gilford. There are at least 48 known cases globally. Earliest symptoms are sclerodema (hardening or scarring of the skin) like skin condition, limited growth, alopecia (hair loss), distinctive appearance with small jaw & face and small bodies like a very elderly person. Tertiary conditions are wrinkled skin, atherosclerosis (disease affecting artery blood vessels), and cardiovascular problems.
Cases where there has been more than one child affected with this birth as in Ghazouet, Algeria (2 chn ), in India was 5 chn, 2 are now deceased, Belgium (2 chn) and ini Aguacatan, Guatemala (3 chn)

However, there is no cure, but there is a scientific organisation working on ways to help fund research etc on this disease.
For more information and on ways to help support this project visit

The Progeria Research Foundation
www.progeriaresearch.org/

Jah bless us all!